descriptions by alec finlay
audiobook read by Mark Bonnar
the poems were composed from responses to a questionnaire devised by alec finlay with guidance from Action for ME. Three hundred people participated. The complete text has been preserved as an anonymous online archive by Action for ME. We wish to express our immense gratitude to the participants.
guidance for listeners
this audiobook may be distressing and liable to be upsetting. Support is available from Action for ME for anyone affected by ME, including friends, families and carers. We chose to include the words of people with ME in their original form, without editing. We recognise that people’s experiences vary greatly; this text can only begin to represent the difficulties that individuals endure. We especially advise discretion in terms of sharing the audiobook with younger readers.
For more information see:
www.actionforme.org.uk/get-information/what-is-me/descriptions/
Image: counterpane, artist concept Alec Finlay; photograph by Hannah Devereux
released June 6, 2022